It has been three months since I did a Fritz update! He is doing awesome!
We had his second MRI this last month and we got great news back. The fluid around his brain has gone down, his ventricles are still increased in size, but they believe this is just his anatomy (not hydrocephalus) and his cyst is stable in size. He is meeting all of his developmental milestones and everyone, including us, feels really confident that Fritz will be just fine. We go back into Neurology in six months and will do another MRI when Fritz is two! We are so thrilled that the diagnosis of Mega Cisterna Magna was incorrect and that we no longer have to worry about Dandy Walker. I’m so thankful for those that have reached out via email, Facebook or Instagram with their own stories. It is SUCH a scary time.
At 27 weeks pregnant we were told our baby had an abnormal brain. They threw out Dandy Walker Malformation. At three days old they confirmed he had enlarged ventricles, excessive fluid and a large posterior space between his skull and brain. We did a full genetic work up, all looked great. At three months they wanted to do a sedated MRI, we fought back. At six months we did one. He still had increased fluid, large ventricles and a large cyst. Today, six months later, Fritz and I partied in a large white tube for five minutes while I scream sang “Baby Shark”. After meeting with our Neurologist and Neurosurgeon we got GREAT news! No surgery. Cyst is stable. Fluid around the brain has decreased. His ventricles are still bigger than they would like but it appears to be his anatomy and not due to any blockage, so we will go in for another MRI in one year if nothing changes! I share this ALL because we are so fortunate. ❤️ Fritz is okay and Adam and I learned how to face what felt like a never ending obstacle as a team, and a positive one. It’s hard not worry, but we’ve just kept saying, “we can’t worry until they give us a reason to.” ❤️
After days later we took Fritz to visit my sister in Salt Lake City. We totally lucked out on the flight out there and had the entire row to ourselves. Fritz slept and was such a good baby. One of the biggest compliments is when people tell you your child is so well behaved or mention they didn’t know a toddler was on the flight. On the way home he was a bit more rumbustious, but the people around us were so sweet. We loved staying at Kate and Billy’s beautiful new house. It was so cozy and my sister has such an eye for detail. I feel in love with SLC. I mean…you walk out of Target and get to see beautiful mountains surrounding you. We went up to Park City for the day and it was a blast. Next time I am definitely snowboarding. Did you know I’ve been snowboarding since fourth grade…and I’m actually good!!!??
This week has been packed with travel for us. I came home from Chicago last week to Fritz taking his first steps! We are working on balance, but he is doing so well and is becoming fearless. This month I am really focused on learning with him. I ordered flash cards and we are DONE with bottles. He currently only has his two bottom teeth, but his FOUR front top teeth are all coming in.Fritz will eat anything and last night I got him a Chik-fil-a kid’s meal and chocolate milk. YUM.
This weekend my mom and MIL are coming to watch Fritz. They asked to have a weekend with him and Adam and I were totally up for it. I can’t wait to see how much fun they have!